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The impact of fatigue on daily life

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  Photo by  Kaleb Dortono  on  Unsplash In this post, we hear from Bernie about his experiences of living with fatigue after brain injury. What is fatigue like for you? Well, it all falls into two buckets. So I feel mentally tired and therefore my language goes. After a busy week, my conversation goes and I feel like I can't communicate quickly or clearly. Then with my walking, it is fine in an open space, but walking in crowds or enclosed spaces takes more mental capacity to make it happen. The damage to my brain was mostly went to my left hand side and I was paralysed on the right hand, right arm, right foot and leg. Nowadays, fatigue for me is weird because my body feels fine, but my mind just lacks clarity. It's alike a brain block; I can't really describe it better than that. It's like a block in the brain. Doing anything requires a process. If somebody interrupts me, it just breaks the process. So I have to live my life in series, not in parallel. If I want ...

The Overwhelming Complexity of Modern Life: A Reflection on Brain Injury and Fatigue

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  ‘The fatigue is not only real, it is absolutely legitimate’: why are so many of us so tired right now? | Australian lifestyle | The Guardian   I saw this article today and it resonated with me; the feeling of so many things to deal with, too many complex issues that I just can't fix, not enough time, not enough emotional and cognitive bandwidth. I feel tired and weary and wonder whether its just me, is this part of getting older? Or is this  feeling of exhaustion and weariness a response to modern life and our rapidly evolving digital landscape? The Parallels with Brain Injury I think back to the people I met through public engagement and involvement in research, those living with brain injury. I particularly recall one young woman talking about the sense that time is moving faster for her than other people. She is going as fast as she can and everyone wonders why she is so slow.  Mental Slowness After a brain injury, survivors often experience slower information p...

Mechanisms of fatigue

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  Unraveling the Mystery of Post-Brain Injury Fatigue  " Over 100 year of research on fatigue and we are not closer to understanding it"  (De Luca, 2005). Have you ever wondered why fatigue after a brain injury feels so different from regular tiredness? It's like comparing a gentle breeze to a hurricane – they're both wind, but the intensity and impact are worlds apart. Let's dive into this fascinating topic and explore why post-brain injury fatigue is such a complex beast. The Multifaceted Nature of Fatigue Imagine your brain as a bustling city. After an injury, it's like some of the roads are closed, traffic lights are malfunctioning, and there's construction everywhere. Everything takes more effort, from simple tasks to complex problem-solving. This is where the complexity of post-brain injury fatigue comes into play. It's not just about feeling tired. It's a intricate web of factors: Physical changes in the brain Emotional state Coping mechanis...

The many faces of fatigue

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  Photo by   Inset Agency   on   Unsplash When I started my research into fatigue, I was surprised by the complexity of fatigue and it took me a while to get to grips with the many ways it is defined. We use the one word 'fatigue' to describe a range of experiences and symptoms. When I talk to therapists and people with brain injury who live with fatigue, they identify different types of fatigue: mental (cognitive), physical, and emotional fatigue. In my current research project,  the need to label fatigue as one type or another is important because people associate different types of fatigue with different types of activity. Some researchers write about exertion fatigue and chronic fatigue, others about fatigue and fatigability, state or trait fatigue (Tseng e al, 2010, Kluger et al, 2011, Wylie & Flashman , 2018). Kluger argues that we need to separate the perception of feeling fatigued from the concept of fatigability when considering neurological conditi...

Je suis fatigué

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The etymology of fatigue: "1660s, "that which causes weariness," from French fatigue "weariness," from fatiguer "to tire" (15c.), from Latin fatigare "to weary, to tire out," originally "to cause to break down," from pre-Latin adjective *fati-agos "driving to the point of breakdown," https://www.etymonline.com/word/fatigue When I started my studies a few years ago, I was talking to people with brain injuries at a local support group about the word " fatigue". People commented that it wasn't a word they used much before their brain injury. In everyday life, we talk about being tired, sometimes exhausted, but less often fatigued. One man explained how in his culture, older people would never admit to being tired, they would either say nothing or say they were ill. Admitting to tiredness was generally seen as a sign of weakness. This conversation triggered several questions for me. Has our understanding of ...

A beginners guide to fatigue research

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A beginner's guide to the research about fatigue after brain injury Welcome to the first post of my new blog. My aim in this blog is to write in plain English about the work I did for my PhD. But more importantly, to write about the research that explores brain injury fatigue, making it more accessible to people who aren't researchers. I aim to share what I learnt about brain injury fatigue, how it affects people in their daily life and the evidence around how best to treat fatigue. This whole journey started when another researcher asked me to look into fatigue after stroke. I was working as a lecturer in occupational therapy but had worked with people with stroke and brain injury in my life as a therapist.  I was interested in fatigue because of my personal resulting from an underactive thyroid condition. When I say experienced fatigue, I mean the kind of tiredness where I couldn't take one more step and felt completely overwhelmed by daily life. It is really hard to put ...